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Decision aid tool for pacients with rare disease

Validating and implementing a decision aid tool for patients with a rare autoimmune hematological disorder

Decision aid tool for patients with a rare autoimmune hematological disorder

1. BUSINESS OBJECTIVES

Our client was in the process of creating a decision support tool tailored for individuals diagnosed with a rare autoimmune hematological disorder. The primary objectives included the validation of the tool’s content and structure, and evaluating the practicality of integrating this tool within clinical settings. Furthermore, the client aimed to advocate for the widespread adoption of this tool by disseminating the research findings.

 

2. BAZIS AMERICAS SOLUTION

Our team employed an iterative process collaborating with the steering committee. Bazis carried out the research in four phases with both patients and providers:

  • Phase 1: Qualitative — Usability testing
  • Phase 2: Quantitative — Online survey & trade-off exercise
  • Phase 3: Qualitative — Redesigned prototype testing
  • Phase 4: Quantitative — Redesigned prototype testing

 

3. CLIENT IMPACT

Our client benefited from a comprehensive and meticulously executed research project that validated the effectiveness of the decision aid tool, demonstrated its practicality for clinical use, and provided a strong foundation for advocating its widespread adoption. This has positioned our client at the forefront of innovation in patient support for this rare autoimmune hematological disorder.

 

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